8th March 2017......This is Aalish (pics below).....Aalish is 7years old and on January 7th 2016 she got diagnosed with Stage 4, High Risk Neuroblastoma. (A ChildHood Cancer). Over the last 14months Aalish has undergone Intense Chemotherapy, High Dose Chemotherapy, Radiotherapy, endless Blood and Platelet infusions, Stem Cell Harvesting, Bone Marrow tests, MRIs, Bone Scans, UltraSounds, Kidney tests and recently 50 days of an Antibody Infusion and 50 injections.
Aalish is a big fan of Kym Marsh, the actress who plays 'Michelle' in Coronation Street. I would love the chance for Aalish to have the opportunity to meet her....so could everyone share this with the hope someone may see and make her dream come true
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💖💖💖Thankyou 💖💖💖💖
Aalish is a big fan of Kym Marsh, the actress who plays 'Michelle' in Coronation Street. I would love the chance for Aalish to have the opportunity to meet her....so could everyone share this with the hope someone may see and make her dream come true
👧👧👧💖💖💖Thankyou 💖💖💖💖
9th March 2017.......Well...it's now official. Aalish has just had the infuser removed and she has now COMPLETED ALL HER TREATMENT!! It feels so surreal and yet what an achievement. An achievement that no child should ever really have to face. So... what happens now....well its time to repeat all the tests again. These will commence at the end of March and continue into April and Aalish will undergo every test she's had throughout her journey. Once these have been completed, Aalish's Consultant will make an appointment for us to go into clinic and get the all important results!! No matter how many times we've gone for results..this one is going to be crucial, scary and possibly even emotional. Please keep Aalish in your thoughts as we await the all important day. Over the last 14months we've taken quite a collection of photos of Aalish...she is our Princess 
👸 our little fighter
👊👊 and our hero 
💪💪
🏅🏅and so here is a collection of photos that have been put together during her fight, along with a song that says it all. We love you Aalish. 💖💖💖
👸 our little fighter👊👊 and our hero 💪💪🏅🏅and so here is a collection of photos that have been put together during her fight, along with a song that says it all. We love you Aalish. 💖💖💖
20th March 2017........ UPDATE**** Aalish WILL be meeting Kym Marsh TOMORROW!! Her dream has come true and we are due to be going up to the set of Coronation Street to see Kym...take a look round and possibly even see some of the cast. Thank you so so much to everyone who shared the post regarding meeting Kym and thank you to two special people who I think made this happen (Fiona and Imogen). Aalish is so excited to meet her....and I can't begin to express how much she adores Kym and the part she plays in Corrie. I will update you in due course with hopefully some amazing photos of her day. 💖💖
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💖💖🙆🙆 
27th March 2017..... This is it then...tomorrow we start the all important tests that will tell us if Aalish has indeed kicked cancer's butt!!! It was such an amazing feeling to get to the end of all her treatment...(and one that we thought may never happen) but actually this is just as scary as the beginning. Aalish will undergo around 9 tests over the next week or so in which her Consultant will be able to get an overall picture of everything.
As most of you will have seen over the last 15months Aalish has been wearing a NG (nasogastric tube) that goes up her nose and down into her tummy. This was so she could take her medicines easily and also fluid and feed if she needed topping up. Well....due to a slight complication this morning her tube is now out!!!. Her face looks normal again and my little princess is looking more like herself. So if I can ask you all again to keep Aalish in your thoughts as she completes these all important tests and support our girl a little further yet.
❤
As most of you will have seen over the last 15months Aalish has been wearing a NG (nasogastric tube) that goes up her nose and down into her tummy. This was so she could take her medicines easily and also fluid and feed if she needed topping up. Well....due to a slight complication this morning her tube is now out!!!. Her face looks normal again and my little princess is looking more like herself. So if I can ask you all again to keep Aalish in your thoughts as she completes these all important tests and support our girl a little further yet.
❤
24th April...... It's been 5 days since we got the news about Aalish.....but for today we've been able to put that life aside. As most of you know, Aalish is a big Barnsley FC Fan. She's been unable to get to a lot of the games this season until recently where a certain player has lifted her spirits no end!! A few weeks ago she had her picture taken with him and just recently he signed her shirt... well today George Moncur and his amazing fiancée, Chelsea called over to see her. They spent 2 hours with us and it's been truly magical. He brought her a signed pair of footy boots and Chelsea brought her a bag full of chocolate and sweetie goodies. As her Mum I can't thank George and Chelsea enough for making today so special and when they said that they would like to keep in touch, see Aalish again and go over to see them....it brought tears to my eyes. They hold a big place in our hearts and this was just what we needed to help us start our next chapter 
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2nd May 2017........ This is it then guys...after spending the weekend with Mum celebrating her big birthday we are now having to come back down to earth as we are due back at SCH tomorrow to find out the plan for Aalish's next chapter of treatment. The news came as a massive shock to us all and it certainly wasn't what we had planned but this is what we have been dealt and so we have to carry on fighting this thing that obviously had other ideas!!! Please stay with Aalish as she goes into this next chapter and I will update her journey once I know the outcome. Thank you so much for your support with our gorgeous girl 🙆💜 Her fight continues...we will continue.....we don't give up!!! TEAMAALISH all the way
🙆💜 Her fight continues...we will continue.....we don't give up!!! TEAMAALISH all the way
3rd May 2017...... Okay...so we've been into hospital this morning and we now have the plan! So I shall begin.
A week tomorrow Thursday 11th May Aalish will be due back to hospital where she will be going down to theatre. Here they are going to be inserting a line into Aalish's neck (on the opposite side of her broviac) in preparation to harvest some more of her cells. Over that weekend she will have a GCSF Injection everyday to also try and boost these cells. On Monday 15th her harvest will begin and will take place over 2-3 days. Following this procedure she will then start Chemotherapy. We can start on either Wednesday 17th or Wednesday 24th May. The Chemotherapy is called TVD and it is made up of three drugs. To start with she will be given 2 courses at 21day intervals ( if her blood count allows this) and each course is given over 7 days.
The first drug is given over 30 minutes daily for 5 days. The second and third drug are given together over a 48 hour infusion starting immediately after the 30 minute drug on days 5 and 6. GCSF is then to start on the third day after the course has completed until the white blood count has recovered and at the same time there will be a 3 week break...before cycle 2. If in the 3 week break Aalish is not well, then Chemo will be delayed.
As always the Chemo carries side effects....Sickness, Ulcers of the mouth, nerve pain along with the fact that Aalish will also lose all her hair again...she will also become bone marrow suppressed...so she will be susceptible to infections! 
😢😢
At the end of cycle 2 she will be re-scanned to assess the response to treatment.
The first drug is given over 30 minutes daily for 5 days. The second and third drug are given together over a 48 hour infusion starting immediately after the 30 minute drug on days 5 and 6. GCSF is then to start on the third day after the course has completed until the white blood count has recovered and at the same time there will be a 3 week break...before cycle 2. If in the 3 week break Aalish is not well, then Chemo will be delayed.
As always the Chemo carries side effects....Sickness, Ulcers of the mouth, nerve pain along with the fact that Aalish will also lose all her hair again...she will also become bone marrow suppressed...so she will be susceptible to infections! 😢😢
At the end of cycle 2 she will be re-scanned to assess the response to treatment.
The first drug is given over 30 minutes daily for 5 days. The second and third drug are given together over a 48 hour infusion starting immediately after the 30 minute drug on days 5 and 6. GCSF is then to start on the third day after the course has completed until the white blood count has recovered and at the same time there will be a 3 week break...before cycle 2. If in the 3 week break Aalish is not well, then Chemo will be delayed.
As always the Chemo carries side effects....Sickness, Ulcers of the mouth, nerve pain along with the fact that Aalish will also lose all her hair again...she will also become bone marrow suppressed...so she will be susceptible to infections! 😢😢
At the end of cycle 2 she will be re-scanned to assess the response to treatment.
A week tomorrow Thursday 11th May Aalish will be due back to hospital where she will be going down to theatre. Here they are going to be inserting a line into Aalish's neck (on the opposite side of her broviac) in preparation to harvest some more of her cells. Over that weekend she will have a GCSF Injection everyday to also try and boost these cells. On Monday 15th her harvest will begin and will take place over 2-3 days. Following this procedure she will then start Chemotherapy. We can start on either Wednesday 17th or Wednesday 24th May. The Chemotherapy is called TVD and it is made up of three drugs. To start with she will be given 2 courses at 21day intervals ( if her blood count allows this) and each course is given over 7 days.
The first drug is given over 30 minutes daily for 5 days. The second and third drug are given together over a 48 hour infusion starting immediately after the 30 minute drug on days 5 and 6. GCSF is then to start on the third day after the course has completed until the white blood count has recovered and at the same time there will be a 3 week break...before cycle 2. If in the 3 week break Aalish is not well, then Chemo will be delayed.
As always the Chemo carries side effects....Sickness, Ulcers of the mouth, nerve pain along with the fact that Aalish will also lose all her hair again...she will also become bone marrow suppressed...so she will be susceptible to infections!
😢😢At the end of cycle 2 she will be re-scanned to assess the response to treatment.
The first drug is given over 30 minutes daily for 5 days. The second and third drug are given together over a 48 hour infusion starting immediately after the 30 minute drug on days 5 and 6. GCSF is then to start on the third day after the course has completed until the white blood count has recovered and at the same time there will be a 3 week break...before cycle 2. If in the 3 week break Aalish is not well, then Chemo will be delayed.
As always the Chemo carries side effects....Sickness, Ulcers of the mouth, nerve pain along with the fact that Aalish will also lose all her hair again...she will also become bone marrow suppressed...so she will be susceptible to infections!
😢😢At the end of cycle 2 she will be re-scanned to assess the response to treatment.
As always the Chemo carries side effects....Sickness, Ulcers of the mouth, nerve pain along with the fact that Aalish will also lose all her hair again...she will also become bone marrow suppressed...so she will be susceptible to infections!
😢😢At the end of cycle 2 she will be re-scanned to assess the response to treatment.
So that's it!!! Don't really know what else to say...but I never dreamt that this is what I'd be doing or writing. I have a head of very mixed emotions!! Some of which I don't want to upload onto you guys! I know ' I have to get on with it' but as her Mum by god it's hard! So..as I always say..please keep Aalish in your thoughts and keep supporting her and her journey as we continue on in 2017
12th May 2017......To say yesterday was a long day would be an understatement. Aalish eventually went to theatre at 5pm. She wasn't allowed to eat after 7 30 in the morning and so as the day progressed became very distressed due to the fact that she was so hungry!! The procedure was done and Aalish was in recovery by 6.15. This morning she is in quite a bit of pain and feeling very uncomfortable. Overnight she's been able to have Calpol and we have Morphine on standby if the pain becomes too much 😢😢we do have the option of going home but I'm going to see how Aalish goes as we have to back in on Sunday for a top up of blood ready to start the harvest on Monday morning. Seeing her like this is tough with more tubes coming out of her neck. We know we have to do whatever it takes to get our Princess better❤
14 May 2017.....Update on Aalish!! After a rough few days Aalish got home from hospital yesterday morning and we spent the afternoon chilling. About 10pm last night we had an UNEXPECTED trip back to hospital as the wound in her neck where the Vascath sits had started to bleed and I wanted to get it checked out for peace of mind. All was ok and with some extra padding we got back home.
We are now heading back to hospital to stay..for how long who knows...could be 1 night..could be 2 or possibly 3 depending on how the harvest goes. Aalish will have some blood later today just to top her up in preparation to start tomorrow!! Such a wonderful life for our little lady 
😔😔 so here goes...part 2!! ❤
16th May 2017.......Well this is where we are now. Aalish had her blood on Sunday and so yesterday morning we had to wait to see if her CD count was high enough. Unfortunately it came back too low and so yesterday was abandoned! This meant Aalish would have to have another painful GCSF Injection followed by another type of booster injection at midnight. ❤😢 this morning her count was better and so we were already to go. As it stands now Aalish has just finished after being hooked up for 5 hours and so tonight at about 7pm we will find out how many cells have been collected. The plan now is that she will have yet another GCSF Injection and another booster injection over night before going on the machine again tomorrow. Despite all the frustration she's kept herself very busy today doing Arts and Crafts with a special friend of hers and also had a lovely gift brought in by her close friend...Tilly❤ who has drawn and painted it herself.
We will now wait and see what the outcome brings us....never did I believe we would be doing this.
25th May 2017...... Aalish completed her first cycle of Chemo yesterday. She started her treatment one day late...which was last Thursday as her stem cell harvest didn't finish till the Wednesday afternoon. Her Chemo was administered everyday until Monday and then two more chemos were given and they remained on her for 48 hours....one of which was an Orangey Red colour. Yesterday when we went back to clinic to have her chemo taken off, her blood was also taken to see what effect had been done. Aalish is already now Neutrophenic and so the fun begins. After a year off chemo we are now back where we started!! We have to be careful where she goes and we have to be careful of who comes round in case of infection. We also have to keep an eye out for temperatures and any sude effects of the chemo such as Sore Mouth.This is the bit I hate and I feel so angry and upset that our little lady is being put through this again!!
On Saturday her gcsf infusions will start...and these are to help her bloods recover from the Chemo. Subject to her bloods recovering and her being well her 2nd cycle is due to start on Wednesday 15th June.😢
😠 KeepSmilingAalish. Love you so so much.
30th June 2017......... Sorry everyone for not updating for a while. After our 2 week stay in hospital..we eventually got home on the 8th June and we've had some well earned time at home having some family time.
So...Aalish was kept in hospital as most of you know with temps...sore throat and a virus which hurt her mouth. All chemo related. Her bloods were hit really hard after this first cycle of TVD Chemo so her second cycle which was due on the 7th June had to be delayed. Unfortunately it then had to be delayed more..again as her bloods were still so low. While at home she's been amazing. She's kept up with her drinking and has basically been an eating machine. Today we've been back in clinic to see if round 2 can begin. Aalish had her bloods taken this morning and after a short wait we were in seeing her consultant to get the news.....and it was all systems go!!! Her neutrophils were the highest they've been and her platelets were too. Her consultant has lowered the dose of Chemo for this cycle in the hope it won't hit her bloods so hard this time. She will obviously become Neutrophenic again and so we'll have to wait and see how that goes at the end of this cycle.
A lot of things are still going round in my and her Dads head with regards to what's happening inside and what may show on her Bone Scan when that takes place....but I guess for now we carry on and get her through this next stage. Thank you all so much for supporting our gorgeous girl.
17th July 2017.......... Well guys it's that time again. Aalish is now 11 days past her chemo from cycle 2 and tomorrow she is due back at hospital to have a canula in so she can have some special radioactive dye put into her in preparation for her MBIG Scan which is due on Wednesday. This will be Aalish's first scan since having to start some more treatment and the results of this will determine what happens next to our gorgeous little girl!! As with all Aalish's tests they prove to be very intense and frightening but right now this scan is proving to be the most terrifying yet...it also becomes very difficult to face that dreaded room where I see Aalish's Consultant for the results. 😔😔 However there is no escaping...I have to keep an open mind and focus. So guys this is it.
22nd July 2017...... So yesterday I went back to see Aalish's consultant regarding the results of her scan. I'm heartbroken to say that the 2 cycles of treatment that Aalish had hasn't worked😢😢 Her consultant has also said that curing Aalish 100% is now going to be a struggle. Yet again my heart sank and no words can describe how we are feeling. HOWEVER....her consultant has no intentions of giving up...right now!!! Her plan is to control the disease as it stands now. We are looking at a trial for Aalish to go on and also looking at the possibility of MBIG Therapy...even the option of treatment plus stem cells again. These treatments have all shown positive outcomes as they have controlled the disease and in some cases killed off some of the disease...making life liveable which at the moment is what we want more than anything for Aalish. Next Thursday Aalish will be due for a repeat Bone Marrow Test too. Her last tests all showed negative results but obviously this test may show different this time. In the meantime we are living life to the fullest with even Annas consent to have a family holiday away
☀️
😎. So..our journey isn't over and we continue on this path as long as we can. Her favourite footballer and his wonderful girlfriend came to see Aalish and the special connection is truly fabulous. They are so special in her life and it shows that there is more than one footballer out there who can make a child smile and feel extremely special. They are with her all the way ❤❤ Can I ask you all to keep Aalish close to all your hearts and hope that she continues to fight this monster every step of the way?
7th August 2017...... Well everyone...Wednesday is nearly upon us and I will be getting the results of Aalishs Bone Marrow. As usual I will be keeping an open mind like I have throughout this journey but I'm also expecting to be told that there is more disease detected😢. From these results I will also be given more info on what the trial (if any) will consist of. Over the weekend Aalish opened the football season as mascot for Barnsley Fc and walked out with her true hero George Moncur at Bristol City. It was a truly memorable day and we were so proud to watch her play her part so well. 
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⚽⚽ Please keep supporting our gorgeous daughter.
10th August 2017...... Ok everyone..so as you all know yesterday was appointment day to see Aalishs Consultant. We were called in and my heart began to race as I took my seat. After the usual chat to Aalish and asking her what she had been upto..Anna then began to talk about her results.
It is with overwhelming joy that Aalishs Bone Marrow is COMPLETELY CLEAR OF DISEASE. 
😍😍👊👊👊❤❤ and to say I shed tears of relief is an understatement. I generally did believe that the news yet again was going to be bad.
Aalish will have her bloods reviewed again in a few weeks and the plan now will be to have treatment for the disease that is in her bones.
It is with overwhelming joy that Aalishs Bone Marrow is COMPLETELY CLEAR OF DISEASE. 😍😍👊👊👊❤❤ and to say I shed tears of relief is an understatement. I generally did believe that the news yet again was going to be bad.
Aalish will have her bloods reviewed again in a few weeks and the plan now will be to have treatment for the disease that is in her bones.
It is with overwhelming joy that Aalishs Bone Marrow is COMPLETELY CLEAR OF DISEASE. 😍😍👊👊👊❤❤ and to say I shed tears of relief is an understatement. I generally did believe that the news yet again was going to be bad.
Aalish will have her bloods reviewed again in a few weeks and the plan now will be to have treatment for the disease that is in her bones.
23rd August 2017........ After a lovely week away in a very hot Majorca we landed back yesterday in 'the not so hot Uk'. Aalish has had a fantastic week enjoying some much needed family time and normality. It really does hit you when you see other families and couples doing things that some of us may never be able to do again 😔😔 taking life for granted. On Friday a special package arrived in Majorca for Aalish. Something that would make her holiday even more precious and that would let her do what most kids do all the time....this being her Drysuit....so she could swim!!! From here on there was no stopping her and it was magical to see our little lady enjoying herself.
This morning we came back to earth and headed off back to SCH to see Aalishs Consultant about the next step. More paperwork...more chemo names and more tests have all been pumped into our heads...and then we wait and see which option the computer decides out of a possible 6. So watch this space. Our daughter never ceases to amaze us😍😍 she takes all this in her stride and never complains about what she has to undergo. No words can explain how much we love her as her parents and I will continue to be by her side all the way.
2nd September 2017..... At the beginning of last week Aalish had a wish granted from Pride of the Isle and where better to go again but her beloved Blackpool? 🎢 We arrived at Tiffany's Hotel on Monday afternoon and the magic began the moment we walked through those beautiful pink doors. Our room was like a Princess Palace. Decorated with pink balloons, chocolates and rock and the bed lit up with flashing fairy lights. That evening we went down for our evening meal and who should appear, but Rapunzel and her Prince. They sang to Aalish, the songs from 'Tangled' and Rapunzel and Aalish told the story of the 'Lost Princess'. This truly was amazing to witness and happy tears took over. On Tuesday Morning it was Pleasure Beach time and I told Aalish we were being picked up by taxi to be taken down!! Well...not quite true; we headed out just before 11am to be greeted by an archway of pink balloons and a red carpet.
Three gorgeous girls dressed as Queens and Princesses were waiting for us who then presented Aalish with 2 Disney bags full of goodies. 
🎁🎁She really was overwhelmed by all this but her smile shone through like never before. Then her 'taxi' arrived. The taxi being a beautiful Horse and Carriage. Decorated in blue and pink we boarded and away we went..waved off by the girls, the manager and some of the residents from Tiffany's.
🐎 At the Pleasure Beach it was VIP all day and the hours of fun I had with Aals was magical. After tea Tuesday evening we watched the entertainment. Yet again Aalish was made to feel special with more gifts. Wednesday was home time..so after Aalish spending some time with her amazing cousins, we headed off. These few days in Blackpool were memories that will never be forgotten and for Aalish, dreams that she never thought she would ever experience. Thank you again will never be enough.
Thursday was hospital time and Aalish was down for her Bone Marrow. More holes in her back so soon after her last 😢😢 we were in and out by 12.
Unfortunately, during the early hours of Friday, morning Aalish got a high temp...so at 2am we headed back to SCH. They took bloods and did other tests to see what could be the cause. With her lines being used on Thursday they have to rule out a line infection. At teatime yesterday her consultant said we could go home and if required I could give her Calpol for the temps. If anything appears from her bloods they will call and let me know. So all in all a very special and very interesting week has been had but as usual Aalish continues to keep smiling and keep fighting.
Thursday was hospital time and Aalish was down for her Bone Marrow. More holes in her back so soon after her last 😢😢 we were in and out by 12.
28th October 2017..... Very emotional morning for me. A sponsored walk has taken place from BARNSLEY FC to SHEFFIELD WEDNESDAY FC with the hope that we will be able to take Aalish (my 7 year old daughter) to Disneyland Paris. Can I say a MASSIVE THANKYOU to Richard Appleton for everything he has done for Aalish over in Belgium and organising this wonderful walk. I am overwhelmed and so proud of my boy Jack Naylor for getting up at 6.45am to this amazing walk for his little sister...and he smashed it! Courtney Naylor too walked for her sister...so proud. So too did Aalish's dad Martin Naylor. 16.7 miles in total for my gorgeous girl who is still fighting...battling Cancer..Neuroblastoma..and has been for nearly 2 years. She is a true red who is in regular contact with George Moncur and his amazing girlfriend. Thank you also to Luke Roby who also joined the walk this morning. I am fully aware that not everyone on Tykes Talk is a Barnsley Supporter after recent chats at the end of last month where it got very heated towards Aalish's Dad..well to all the true fans out there, I am truly thankful to everyone who cheered them on...tooted as they drove past and donated money on their walk. Thank you so so much too...to all the wonderful people who have donated...thank you will never ever be enough. Memories are now our goal with Aalish and to make her life as special as we can. I'll take the draw today at Hillsborough and cherish that too 💖💖 COYR.
