January 2017
13th January 2017...... Just another update on Aalish....Aalish finished cycle 3 of her Immunotherapy on the 29th Dec. She came home on her infusion as planned and we managed to get Christmas at home. Today we have been back to SCH to see her consultant for her routine checks in preparation to start cycle 4 on Monday. All in all Aalish's Consultant is really pleased with how everything is going with the Immunotherapy Treatment and her response. Her bloods seem good, she has gained a little weight and looks well. On a slightly different note, while we were there we spoke about her scans over the last 12 months and how they compared. For the first time since diagnosis we were shown her first scans and then her recent scans....and my god....what an eye opener. Can't believe that something so big didn't cause Aalish any pain at the time. Here are her scans...welcome to the world of.....Neuroblastoma!!!!The first picture shows the lump on the right side squashing her kidney...the second picture shows the lump pushing down on her eye....the third picture shows the lump so much smaller on the right and finally the fourth picture shows Aalish's Bone Scans. The right four diagrams show her body showing masses of black marks. This is the Cancer in her bones from head to foot. The left four diagrams show her body from when she was scanned in September and other than the black marks of her organs, as it stands there is No Evidence of Cancer!! What a girl...what a warrior!!!! 
                           February 2017
20th February 2017....... Well...this is it guys. At SCH and about to start the 5th and final cycle of Immunotherapy. Only seems like yesterday that we were beginning this part of the treatment and here we are now on the final hurdle. When I look back it's gone so quick but at the same time it's been one of the hardest parts too, so at the beginning of last week with help from the hospital we had a few days away to unwind. We took in some wonderful attractions including Sealife Centre, Madame Tussauds and The Dungeons (which was worth every penny) and had a fab time...with a change of scenery and normality. 
So as it stands Aalish has just had injection number 41 out of 50 and so, could everyone keep Aalish in their thoughts as she heads her way down towards the finish line?
                                           February 2017
                            March 2017
8th March 2017......This is Aalish (pics below).....Aalish is 7years old and on January 7th 2016 she got diagnosed with Stage 4, High Risk Neuroblastoma. (A ChildHood Cancer). Over the last 14months Aalish has undergone Intense Chemotherapy, High Dose Chemotherapy, Radiotherapy, endless Blood and Platelet infusions, Stem Cell Harvesting, Bone Marrow tests, MRIs, Bone Scans, UltraSounds, Kidney tests and recently 50 days of an Antibody Infusion and 50 injections. 
Aalish is a big fan of Kym Marsh, the actress who plays 'Michelle' in Coronation Street. I would love the chance for Aalish to have the opportunity to meet her....so could everyone share this with the hope someone may see and make her dream come true πŸ‘§πŸ‘§πŸ‘§πŸ’–πŸ’–πŸ’–
Thankyou πŸ’–πŸ’–πŸ’–πŸ’–
9th March 2017.......Well...it's now official. Aalish has just had the infuser removed and she has now COMPLETED ALL HER TREATMENT!! It feels so surreal and yet what an achievement. An achievement that no child should ever really have to face. So... what happens now....well its time to repeat all the tests again. These will commence at the end of March and continue into April and Aalish will undergo every test she's had throughout her journey. Once these have been completed, Aalish's Consultant will make an appointment for us to go into clinic and get the all important results!! No matter how many times we've gone for results..this one is going to be crucial, scary and possibly even emotional. Please keep Aalish in your thoughts as we await the all important day. Over the last 14months we've taken quite a collection of photos of Aalish...she is our Princess πŸ‘Έ our little fighterπŸ‘ŠπŸ‘Š and our hero πŸ’ͺπŸ’ͺπŸ…πŸ…and so here is a collection of photos that have been put together during her fight, along with a song that says it all. We love you Aalish. πŸ’–πŸ’–πŸ’–
                                        Click the picture below for link to video
20th March 2017........  UPDATE**** Aalish WILL be meeting Kym Marsh TOMORROW!! Her dream has come true and we are due to be going up to the set of Coronation Street to see Kym...take a look round and possibly even see some of the cast. Thank you so so much to everyone who shared the post regarding meeting Kym and thank you to two special people who I think made this happen (Fiona and Imogen). Aalish is so excited to meet her....and I can't begin to express how much she adores Kym and the part she plays in Corrie. I will update you in due course with hopefully some amazing photos of her day. πŸ’–πŸ’–πŸ™†πŸ™† 
22 March 2017.........  Well guys.....what can I say.....don't know what to say.....other than yesterday was the most truly magical day I have ever had the pleasure to witness!!! Aalish has continued smiling all the way through her 15 months of gruelling treatment, but I can honestly say that I've never seen her smile so much and look so happy like I did yesterday. 

From the moment we arrived at ITV Coronation Street ...we were made so welcome...we signed in and then it all happened......the person Aalish had longed to meet for so long was there....Kym. To see my girl have her dream come true....was the most overwhelming moment as a Mum. Kym greeted her with open arms and it was such a special moment. From then on our day began. Kym showed her everything that we could only possibly have dreamed of right from her dressing room.....to the street....to the sets....we even sat in on some filming. 

We had some lunch....where we had the pleasure of meeting some of the cast too which was phenomenal. They too made Aalish feel very welcome and so special....chatting to her over the day. From the moment we started and as we were talking, Aalish soon adapted to what she was experiencing and before long she was talking to Kym like she'd known her for years. It was so precious. 

I'm so thankful that this day came true for my little princess. Jack also came on our special visit...and he too was made very welcome. You'd be surprised at how many people have just expected Jack to carry on....witness some of the things his sister has had to go through and only see the bad and not the good times....the smiles and the giggles.....the hugs and the cuddles!!! Well he wasn't going to miss out on this and so he too saw Aalish glowing with sheer delight and happiness. I will never be able to thank Kym enough for taking time to meet Aalish yesterday..she's asked me to let her know how Aalish gets on in the next few weeks after we get her test results (that was so special). I'll leave you with some photos of our truly amazing day (below).

27th March 2017..... This is it then...tomorrow we start the all important tests that will tell us if Aalish has indeed kicked cancer's butt!!! It was such an amazing feeling to get to the end of all her treatment...(and one that we thought may never happen) but actually this is just as scary as the beginning. Aalish will undergo around 9 tests over the next week or so in which her Consultant will be able to get an overall picture of everything. 
As most of you will have seen over the last 15month
s Aalish has been wearing a NG (nasogastric tube) that goes up her nose and down into her tummy. This was so she could take her medicines easily and also fluid and feed if she needed topping up. Well....due to a slight complication this morning her tube is now out!!!. Her face looks normal again and my little princess is looking more like herself. So if I can ask you all again to keep Aalish in your thoughts as she completes these all important tests and support our girl a little further yet. β€

March 2017 @ Corrie

Click a thumbnail to expand image.

April 2017
14th April 2017......  Just a little *UPDATE* Aalish got home from hospital 2 days after being admitted on the Tuesday with a high temperature. After numerous tests they found that she had a form of Flu called ParaFlu. On the Thursday morning she also underwent her final tests of the fortnight which was the Bone Marrow Trephine and Bone Marrow Aspirate. As it stands now Aalish completed her all important tests 8 days ago and so we wait......On Wednesday of next week we will find out if Aalish is in remission. That word 'Remission' a word you never think you'll ever hear when it involves your child!! As Aalish's parents, we will have to walk back into that same room where we sat down 15 months ago and were told ' your 6 year old daughter has Cancer'. 'Aalish has got High Risk Stage 4 Neuroblastoma' where our world and lives fell apart. At the moment I have very mixed emotions. I'm scared, I'm nervous and I'm praying so much for good news and I still have 5 more days to go. Some of you who read this know exactly how 'as parents' we feel and I know that this is something we have to hear no matter what. To the people on Aalish's Journey, to friends close to home and overseas and to close family who live overseas can I please please ask that you keep Aalish close to your hearts as we hear her results and see if she rings that all important bell in clinic on Wednesday. 
19th April 2017....... Well....there's no really easy way of saying what I'm about to say so I'll just have to say it!! Unfortunately Aalish hasn't rung the bell in clinic today. Her tumour is still inactive and both her Bone Marrow results have come back clear.... however the Cancer has re-shown itself in parts of her bones. This for us is without doubt completely devastating news for the second time. For Aalish this will mean more Chemo, more medicines, she will lose her hair and will feel poorly again. As it stands at the moment, her Consultant is happy for her to have some time out and about before she starts and we will be due back in clinic on Wednesday 3rd May to find out the plan. We need you guys more than ever now to guide and help our gorgeous girl through this again. Through the good days and the bad days and as her Mum, your strength will help with my strength.....'cos by God, I think I'm going to need it. However I can do this ...we can do this. NO GIVING UP.
24th April 2017........ Golborne Hockey Club had the absolute pleasure to meet this little trooper,
Aalish, she had the biggest smile going. She showed us what it takes to be true little legend. We wish you all the best with your up coming treatments and hope you really enjoy your weekend on the island for your nan's birthday. Amazing family, stay strong. Lots of love, GHC xxx
24th April......  It's been 5 days since we got the news about Aalish.....but for today we've been able to put that life aside. As most of you know, Aalish is a big Barnsley FC Fan. She's been unable to get to a lot of the games this season until recently where a certain player has lifted her spirits no end!! A few weeks ago she had her picture taken with him and just recently he signed her shirt... well today George Moncur and his amazing fiancΓ©e, Chelsea called over to see her. They spent 2 hours with us and it's been truly magical. He brought her a signed pair of footy boots and Chelsea brought her a bag full of chocolate and sweetie goodies. As her Mum I can't thank George and Chelsea enough for making today so special and when they said that they would like to keep in touch, see Aalish again and go over to see them....it brought tears to my eyes. They hold a big place in our hearts and this was just what we needed to help us start our next chapter πŸ’œπŸ’œπŸ’œ

28th April 2017..........
Golborne Hockey Club had the absolute pleasure to meet this little trooper,
Aalish, she had the biggest smile going. She showed us what it takes to be true little legend. We wish you all the best with your up coming treatments and hope you really enjoy your weekend on the island for your nans birthday. Amazing family, stay strong. Lots of love, GHC xxx
Aalish, she had the biggest smile going. She showed us what it takes to be true little legend. We wish you all the best with your up coming treatments and hope you really enjoy your weekend on the island for your nans birthday. Amazing family, stay strong. Lots of love, GHC xxx
Aalish, she had the biggest smile going. She showed us what it takes to be true little legend. We wish you all the best with your up coming treatments and hope you really enjoy your weekend on the island for your nans birthday. Amazing family, stay strong. Lots of love, GHC xxx

May 2017

2nd May 2017........  This is it then guys...after spending the weekend with Mum celebrating her big birthday we are now having to come back down to earth as we are due back at SCH tomorrow to find out the plan for Aalish's next chapter of treatment. The news came as a massive shock to us all and it certainly wasn't what we had planned but this is what we have been dealt and so we have to carry on fighting this thing that obviously had other ideas!!! Please stay with Aalish as she goes into this next chapter and I will update her journey once I know the outcome. Thank you so much for your support with our gorgeous girl πŸ™†πŸ’œ     Her fight continues...we will continue.....we don't give up!!! TEAMAALISH all the way

3rd May 2017...... Okay...so we've been into hospital this morning and we now have the plan! So I shall begin.
A week tomorrow Thursday 11th May Aalish will be due back to hospital where she will be going down to theatre. Here they are going to be inserting a line into Aalish's neck (on the opposite side of her broviac) in preparation to harvest some more of her cells. Over that weekend she will have a GCSF Injection everyday to also try and boost these cells. On Monday 15th her harvest will begin and will take place over 2-3 days. Following this procedure she will then start Chemotherapy. We can start on either Wednesday 17th or Wednesday 24th May. The Chemotherapy is called TVD and it is made up of three drugs. To start with she will be given 2 courses at 21day intervals ( if her blood count allows this) and each course is given over 7 days.
The first drug is given over 30 minutes daily for 5 days. The second and third drug are given together over a 48 hour infusion starting immediately after the 30 minute drug on days 5 and 6. GCSF is then to start on the third day after the course has completed until the white blood count has recovered and at the same time there will be a 3 week break...before cycle 2. If in the 3 week break Aalish is not well, then Chemo will be delayed. 

As always the Chemo carries side effects....Sickness, Ulcers of the mouth, nerve pain along with the fact that Aalish will also lose all her hair again...she will also become bone marrow suppressed...so she will be susceptible to infections! πŸ˜’😒
At the end of cycle 2 she will be re-scanned to assess the response to treatment.

The first drug is given over 30 minutes daily for 5 days. The second and third drug are given together over a 48 hour infusion starting immediately after the 30 minute drug on days 5 and 6. GCSF is then to start on the third day after the course has completed until the white blood count has recovered and at the same time there will be a 3 week break...before cycle 2. If in the 3 week break Aalish is not well, then Chemo will be delayed. 

As always the Chemo carries side effects....Sickness, Ulcers of the mouth, nerve pain along with the fact that Aalish will also lose all her hair again...she will also become bone marrow suppressed...so she will be susceptible to infections! πŸ˜’😒
At the end of cycle 2 she will be re-scanned to assess the response to treatment.

The first drug is given over 30 minutes daily for 5 days. The second and third drug are given together over a 48 hour infusion starting immediately after the 30 minute drug on days 5 and 6. GCSF is then to start on the third day after the course has completed until the white blood count has recovered and at the same time there will be a 3 week break...before cycle 2. If in the 3 week break Aalish is not well, then Chemo will be delayed. 

As always the Chemo carries side effects....Sickness, Ulcers of the mouth, nerve pain along with the fact that Aalish will also lose all her hair again...she will also become bone marrow suppressed...so she will be susceptible to infections! πŸ˜’😒
At the end of cycle 2 she will be re-scanned to assess the response to treatment.
So that's it!!! Don't really know what else to say...but I never dreamt that this is what I'd be doing or writing. I have a head of very mixed emotions!! Some of which I don't want to upload onto you guys! I know ' I have to get on with it' but as her Mum by god it's hard! So..as I always say..please keep Aalish in your thoughts and keep supporting her and her journey as we continue on in 2017 
11th May 2017.......Well we're back!! All admitted and waiting to go to theatre to have the Vascath Inserted. Will try and keep you all posted on how Aalish is coping later.
12th May 2017......To say yesterday was a long day would be an understatement. Aalish eventually went to theatre at 5pm. She wasn't allowed to eat after 7 30 in the morning and so as the day progressed became very distressed due to the fact that she was so hungry!! The procedure was done and Aalish was in recovery by 6.15. This morning she is in quite a bit of pain and feeling very uncomfortable. Overnight she's been able to have Calpol and we have Morphine on standby if the pain becomes too much πŸ˜’😒we do have the option of going home but I'm going to see how Aalish goes as we have to back in on Sunday for a top up of blood ready to start the harvest on Monday morning. Seeing her like this is tough with more tubes coming out of her neck. We know we have to do whatever it takes to get our Princess better❀
14 May 2017.....Update on Aalish!! After a rough few days Aalish got home from hospital yesterday morning and we spent the afternoon chilling. About 10pm last night we had an UNEXPECTED trip back to hospital as the wound in her neck where the Vascath sits had started to bleed and I wanted to get it checked out for peace of mind. All was ok and with some extra padding we got back home. 
We are now heading back to hospital to stay..for how long who knows...could be 1 night..could be 2 or possibly 3 depending on how the harvest goes. Aalish will have some blood later today just to top her up in preparation to start tomorrow!! Such a wonderful life for our little lady πŸ˜”πŸ˜” so here goes...part 2!! 
❀
16th May 2017.......Well this is where we are now. Aalish had her blood on Sunday and so yesterday morning we had to wait to see if her CD count was high enough. Unfortunately it came back too low and so yesterday was abandoned! This meant Aalish would have to have another painful GCSF Injection followed by another type of booster injection at midnight. β€πŸ˜’ this morning her count was better and so we were already to go. As it stands now Aalish has just finished after being hooked up for 5 hours and so tonight at about 7pm we will find out how many cells have been collected. The plan now is that she will have yet another GCSF Injection and another booster injection over night before going on the machine again tomorrow. Despite all the frustration she's kept herself very busy today doing Arts and Crafts with a special friend of hers and also had a lovely gift brought in by her close friend...Tilly❀ who has drawn and painted it herself. 
We will now wait and see what the outcome brings us....never did I believe we would be doing this.


25th May 2017......    Aalish completed her first cycle of Chemo yesterday. She started her treatment one day late...which was last Thursday as her stem cell harvest didn't finish till the Wednesday afternoon. Her Chemo was administered everyday until Monday and then two more chemos were given and they remained on her for 48 hours....one of which was an Orangey Red colour. Yesterday when we went back to clinic to have her chemo taken off, her blood was also taken to see what effect had been done. Aalish is already now Neutrophenic and so the fun begins. After a year off chemo we are now back where we started!! We have to be careful where she goes and we have to be careful of who comes round in case of infection. We also have to keep an eye out for temperatures and any sude effects of the chemo such as Sore Mouth.This is the bit I hate and I feel so angry and upset that our little lady is being put through this again!! 
On Saturday her gcsf infusions will start...and these are to help her bloods recover from the Chemo. Subject to her bloods recovering and her being well her 2nd cycle is due to start on Wednesday 15th June.😒😠 KeepSmilingAalish. Love you so so much.
31st May 2017.... So...an update on our princess. Aalish is having a rough week to say the least. Temperatures on and off.. very sore mouth and throat. She's on various antibiotics and this morning they've added a third. Been a worrying time as nothing was showing from her blood cultures. However this morning her mouth swab has shown a virus and so too has her blood. At the moment Aalish is very wishy washy. She is on oral morphine to help with the pain in her mouth and throat. To say I've had a few wobbles while being with Aalish would be an understatement. A lot of people have said "well at least you know what to expect," but believe, me seeing this again is hard....so much harder! Aalish has had 3 platelet transfusions too but her HB is holding out....and she is completely Neutrophenic. They are giving her daily infusions of GCSF to try and lift this. Not too sure how long we'll be in SCH but whatever will be will be. Please keep our little lady going with all your support and caring comments. This means so much to us again...like you'll never ever begin to know. 
May 2017
June 2017
30th June 2017......... Sorry everyone for not updating for a while. After our 2 week stay in hospital..we eventually got home on the 8th June and we've had some well earned time at home having some family time. 
So...Aalish was kept in hospital as most of you know with temps...sore throat and a virus which hurt her mouth. All chemo related. Her bloods were hit really hard after this first cycle of TVD Chemo so her second cycle which was due on the 7th June had to be delayed. Unfortunately it then had to be delayed more..again as her bloods were still so low. While at home she's been amazing. She's kept up with her drinking and has basically been an eating machine. Today we've been back in clinic to see if round 2 can begin. Aalish had her bloods taken this morning and after a short wait we were in seeing her consultant to get the news.....and it was all systems go!!! Her neutrophils were the highest they've been and her platelets were too. Her consultant has lowered the dose of Chemo for this cycle in the hope it won't hit her bloods so hard this time. She will obviously become Neutrophenic again and so we'll have to wait and see how that goes at the end of this cycle. 
A lot of things are still going round in my and her Dads head with regards to what's happening inside and what may show on her Bone Scan when that takes place....but I guess for now we carry on and get her through this next stage. Thank you all so much for supporting our gorgeous girl. 


July 2017
17th July 2017.......... Well guys it's that time again. Aalish is now 11 days past her chemo from cycle 2 and tomorrow she is due back at hospital to have a canula in so she can have some special radioactive dye put into her in preparation for her MBIG Scan which is due on Wednesday. This will be Aalish's first scan since having to start some more treatment and the results of this will determine what happens next to our gorgeous little girl!! As with all Aalish's tests they prove to be very intense and frightening but right now this scan is proving to be the most terrifying yet...it also becomes very difficult to face that dreaded room where I see Aalish's Consultant for the results. πŸ˜”πŸ˜” However there is no escaping...I have to keep an open mind and focus. So guys this is it.
22nd July 2017...... So yesterday I went back to see Aalish's consultant regarding the results of her scan. I'm heartbroken to say that the 2 cycles of treatment that Aalish had hasn't worked😒😒 Her consultant has also said that curing Aalish 100% is now going to be a struggle. Yet again my heart sank and no words can describe how we are feeling. HOWEVER....her consultant has no intentions of giving up...right now!!! Her plan is to control the disease as it stands now. We are looking at a trial for Aalish to go on and also looking at the possibility of MBIG Therapy...even the option of treatment plus stem cells again. These treatments have all shown positive outcomes as they have controlled the disease and in some cases killed off some of the disease...making life liveable which at the moment is what we want more than anything for Aalish. Next Thursday Aalish will be due for a repeat Bone Marrow Test too. Her last tests all showed negative results but obviously this test may show different this time. In the meantime we are living life to the fullest with even Annas consent to have a family holiday awayβ˜€οΈπŸ˜Ž. So..our journey isn't over and we continue on this path as long as we can. Her favourite footballer and his wonderful girlfriend came to see Aalish and the special connection is truly fabulous. They are so special in her life and it shows that there is more than one footballer out there who can make a child smile and feel extremely special. They are with her all the way β€β€ Can I ask you all to keep Aalish close to all your hearts and hope that she continues to fight this monster every step of the way?
August 2017
7th August 2017...... Well everyone...Wednesday is nearly upon us and I will be getting the results of Aalishs Bone Marrow. As usual I will be keeping an open mind like I have throughout this journey but I'm also expecting to be told that there is more disease detected😒. From these results I will also be given more info on what the trial (if any) will consist of. Over the weekend Aalish opened the football season as mascot for Barnsley Fc and walked out with her true hero George Moncur at Bristol City. It was a truly memorable day and we were so proud to watch her play her part so well. πŸ‘πŸ‘βš½βš½ Please keep supporting our gorgeous daughter.

10th August 2017.....Ok everyone..so as you all know yesterday was appointment day to see Aalishs Consultant. We were called in and my heart began to race as I took my seat. After the usual chat to Aalish and asking her what she had been upto..Anna then began to talk about her results.
It is with overwhelming joy that Aalishs Bone Marrow is COMPLETELY CLEAR OF DISEASE. πŸ˜πŸ˜πŸ‘ŠπŸ‘ŠπŸ‘Šβ€β€ and to say I shed tears of relief is an understatement. I generally did believe that the news yet again was going to be bad.
Aalish will have her bloods reviewed again in a few weeks and the plan now will be to have treatment for the disease that is in her bones.
It is with overwhelming joy that Aalishs Bone Marrow is COMPLETELY CLEAR OF DISEASE. πŸ˜πŸ˜πŸ‘ŠπŸ‘ŠπŸ‘Šβ€β€ and to say I shed tears of relief is an understatement. I generally did believe that the news yet again was going to be bad.
Aalish will have her bloods reviewed again in a few weeks and the plan now will be to have treatment for the disease that is in her bones.
It is with overwhelming joy that Aalishs Bone Marrow is COMPLETELY CLEAR OF DISEASE. πŸ˜πŸ˜πŸ‘ŠπŸ‘ŠπŸ‘Šβ€β€ and to say I shed tears of relief is an understatement. I generally did believe that the news yet again was going to be bad.
Aalish will have her bloods reviewed again in a few weeks and the plan now will be to have treatment for the disease that is in her bones.
15th August 2017....... So everyone...Aalish's Consultant spoke to me as you all know a few weeks ago about the next stage of treatment. During our chat, the subject of a break came into conversation. Anna felt Aalish needed some proper holiday time. Well after a few days of sorting some bits and pieces out...today the four of us arrived in Majorca. We flew here with Thomas Cook airlines who truly made our Princess feel special..they announced her on board and invited her down to the Cockpit when we landed. It's been a long time since we've seen Aalish so excited...so this is a very special time for us and of course for Aalish's Journey!!
23rd August 2017........  After a lovely week away in a very hot Majorca we landed back yesterday in 'the not so hot Uk'. Aalish has had a fantastic week enjoying some much needed family time and normality. It really does hit you when you see other families and couples doing things that some of us may never be able to do again πŸ˜”πŸ˜” taking life for granted. On Friday a special package arrived in Majorca for Aalish. Something that would make her holiday even more precious and that would let her do what most kids do all the time....this being her Drysuit....so she could swim!!! From here on there was no stopping her and it was magical to see our little lady enjoying herself. 
This morning we came back to earth and headed off back to SCH to see Aalishs Consultant about the next step. More paperwork...more chemo names and more tests have all been pumped into our heads...and then we wait and see which option the computer decides out of a possible 6. So watch this space. Our daughter never ceases to amaze us😍😍 she takes all this in her stride and never complains about what she has to undergo. No words can explain how much we love her as her parents and I will continue to be by her side all the way.
August
September
2nd September 2017.....  At the beginning of last week Aalish had a wish granted from Pride of the Isle and where better to go again but her beloved Blackpool? πŸŽ’ We arrived at Tiffany's Hotel on Monday afternoon and the magic began the moment we walked through those beautiful pink doors. Our room was like a Princess Palace. Decorated with pink balloons, chocolates and rock and the bed lit up with flashing fairy lights. That evening we went down for our evening meal and who should appear, but Rapunzel and her Prince. They sang to Aalish, the songs from 'Tangled' and Rapunzel and Aalish told the story of the 'Lost Princess'. This truly was amazing to witness and happy tears took over. On Tuesday Morning it was Pleasure Beach time and I told Aalish we were being picked up by taxi to be taken down!! Well...not quite true; we headed out just before 11am to be greeted by an archway of pink balloons and a red carpet. 
Three gorgeous girls dressed as Queens and Princesses were waiting for us who then presented Aalish with 2 Disney bags full of goodies. πŸŽπŸŽShe really was overwhelmed by all this but her smile shone through like never before. Then her 'taxi' arrived. The taxi being a beautiful Horse and Carriage. Decorated in blue and pink we boarded and away we went..waved off by the girls, the manager and some of the residents from Tiffany's.🐎 At the Pleasure Beach it was VIP all day and the hours of fun I had with Aals was magical. After tea Tuesday evening we watched the entertainment. Yet again Aalish was made to feel special with more gifts. Wednesday was home time..so after Aalish spending some time with her amazing cousins, we headed off. These few days in Blackpool were memories that will never be forgotten and for Aalish, dreams that she never thought she would ever experience. Thank you again will never be enough.
Thursday was hospital time and Aalish was down for her Bone Marrow. More holes in her back so soon after her last πŸ˜’😒 we were in and out by 12. 
Unfortunately, during the early hours of Friday, morning Aalish got a high temp...so at 2am we headed back to SCH. They took bloods and did other tests to see what could be the cause. With her lines being used on Thursday they have to rule out a line infection. At teatime yesterday her consultant said we could go home and if required I could give her Calpol for the temps. If anything appears from her bloods they will call and let me know. So all in all a very special and very interesting week has been had but as usual Aalish continues to keep smiling and keep fighting.
Thursday was hospital time and Aalish was down for her Bone Marrow. More holes in her back so soon after her last πŸ˜’😒 we were in and out by 12. 

14th September 2017......  Just a quick update on Aalish! 
Over the last 10 days Aalish had been having some routine tests in preparation to start a new trial. In order to be eligible to do the trial her Platelets had to be over 75. As this was the case, the tests began . At the end of last week she had completed a repeat Bone Marrow, a Heart Scan, X-Ray and MRI. On Tuesday some bloods were taken for a check and unfortunately her platelets had dropped. Later that evening I received a call to go and see Anna on Wednesday as there could now be a change of plan. As it stands now, Aalish won't be doing the trial due to her Platelets..so last night she started a new Chemo...an Oral Chemo which consists of two tablets mixed with apple juice and put down her nose tube. This is for 5 days and the plan is she will have two courses...the second one being due in 4 weeks. Anna has lowered the dose to try and prevent Aalish being in hospital as much as possible. While speaking with Anna, some more issues were raised which at present me and her Dad need to adjust to...so I'm not ready to put these out....so for the time being and as I always ask please could you keep our precious and gorgeous girl close to your hearts as we wait to see if this treatment can help? 
September
28th October 2017..... Very emotional morning for me. A sponsored walk has taken place from BARNSLEY FC to SHEFFIELD WEDNESDAY FC with the hope that we will be able to take Aalish (my 7 year old daughter) to Disneyland Paris. Can I say a MASSIVE THANKYOU to Richard Appleton for everything he has done for Aalish over in Belgium and organising this wonderful walk. I am overwhelmed and so proud of my boy Jack Naylor for getting up at 6.45am to this amazing walk for his little sister...and he smashed it! Courtney Naylor too walked for her sister...so proud. So too did Aalish's dad Martin Naylor. 16.7 miles in total for my gorgeous girl who is still fighting...battling Cancer..Neuroblastoma..and has been for nearly 2 years. She is a true red who is in regular contact with George Moncur and his amazing girlfriend. Thank you also to Luke Roby who also joined the walk this morning. I am fully aware that not everyone on Tykes Talk is a Barnsley Supporter after recent chats at the end of last month where it got very heated towards Aalish's Dad..well to all the true fans out there, I am truly thankful to everyone who cheered them on...tooted as they drove past and donated money on their walk. Thank you so so much too...to all the wonderful people who have donated...thank you will never ever be enough. Memories are now our goal with Aalish and to make her life as special as we can. I'll take the draw today at Hillsborough and cherish that too πŸ’–πŸ’– COYR. 
          Aalish's 8th birthday is on this coming Saturday, 18th November. Happy birthday to Aalish.

Barnsley Chronicle - Mid March, 2018

Easter edition - 29th March, 2018